What is Prader-Willi Syndrome?
PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity, among many other medical and developmental issues.
PWS is the most common known genetic cause of life-threatening obesity.
Prader-Willi syndrome is a life-long condition and currently there is no cure.
How Fundraisiers Support Our Mission:
- Parent Mentoring
- Research & Awareness
- Medical & Crisis Support
- Education and Public Policy Advocacy
*Prader-Willii Syndrome Association (USA) (PWSA (USA)) is a non-profit organization with a 501(c)(3) status as designated by the IRS and is dedicated to improving and enhancing the lives of everyone affected by Prader-Willi syndrome.
A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION FOR PRADER-WILLI SYNDROME (USA) MAY BE OBTAINED FROM THE FLORIDA DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE OF FLORIDA, 1-800-435-7352. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.
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Federal Employees Combined Federal Campaign Number is 10088