But this definition is missing so much!

 

The definition above completely misses the mark in showing how Down syndrome can make your life better, richer, fuller, and pack it full with love. Down syndrome can bring you closer to the most beautiful, giving people in the world – people you wouldn’t have otherwise met. Down syndrome allows you to learn the joy of truly unconditional love for your child. Down syndrome teaches you that in something that brought you such pain, such as with the diagnosis of your child, such beauty and intense love can grow.

 

This is what Down syndrome really is. The Brey and the Proffitt families have learned this. They have become closer to one another because of Down syndrome. And they are truly blessed because of this. So for the second year, their families are joining forces for the Down Syndrome Association of Wisconsin (DSAW) Down Syndrome Awareness Walk on Sunday, September 27 at the Milwaukee County Zoo. Because Down syndrome brings you closer to others, it is only right they do this walk together as one team.

 

Down syndrome also is about struggles. Like the struggle of seeing your child develop at a different rate than typical peers. The challenge of possible complications in health. The challenge of advocating for your child to get the services they need. And, perhaps the biggest challenge, the challenge of discrimination, such as through access to services, use of the r-word, jokes, and other invalidations or insensitivities.

 

This walk is important for many reasons. It helps us raise money for DSAW which provides support and services for families and individuals with Down syndrome in the State of Wisconsin. This walk brings awareness to others of the beauty, love, and togetherness of Down syndrome. And this walk supports those of us on this journey of such highs and lows in our lives. Last year our team was huge in numbers, full of love and raised $4,150.00. We are proud of the photo of our 2008 team. It was beautiful to see the love and support we received from our families, friends, previous students, colleagues, and members of our church. We also received so many words of encouragement for the walk and the importance of this encouragement was priceless. Please help us this year by doing something. Some ideas: Join our team, start your own team, donate to the awareness walk, spread the word about our walk, pray for us, help others see that the r-word hurts others (don’t just let it pass someone’s lips without saying something), spend time with someone with Down syndrome, share our story – and the list can go on and on. Just please do something! We will forever be grateful. Grace and Quinn will thank you!

 

Please forward our message to others. We would love to see you and others join our team! To join our team simply click on the Team Name link located in the upper right corner of this page. Whatever you do, please spread the word. Information on the Down Syndrome Awareness Walk is located at: http://www.firstgiving.com/dsaw

 

To make a tax-deductable donation, you can do so right here on the firstgiving site. You can also email us at obelvedere@wi.rr.com  or call us at (262) 613-9975 to get our home address to send a check OR mail it  directly to DSAW at 9401 W. Beloit Road, Suite 311, Milwaukee, WI 53227 (please note on the memo of the check that the donation is for Quinn’s Crusaders/Grace’s Kritter Krew). All checks should be made payable to DSAW.

 

Thank you for your continued love, support, and especially your prayers. We are blessed.

 

Love,

 

The Proffitt & Brey Families