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1st Annual Alabama Strollathon

1st Annual Alabama Strollathon

 

"Strolling Under the Stars"
 
Join us for the 1st Annual Alabama Strollathon in support of Rett Syndrome! The strollathon directly supports IRSF's mission to fund research for treatments & a cure for Rett Syndrome while enhancing the overall quality of life for those living with RTT.
 
Registration 5:45 pm- 6:30 pm
Activities begin at 6:00 pm
Stroll Begins- 6:45 pm
Raffle/ Door Prize Drawings- 7:30 pm
 
There will be a HUGE firworks display visible from our location between 9 and 9:30 (as soon as the Baron's game is over) for anyone wanting to stay and watch them. 
 
 
About The Strollathon Program:
The Strollathon is the signature event of the International Rett Syndrome Foundation. It is a fun-filled event which raises crucial research dollars and public awareness of Rett syndrome (RTT) in communities across the country and even worldwide. The program has grown tremendously since the Inaugural event in 2002 and has raised nearly $6 million for research, family support and advocacy. The Strollathon program is the heart of the IRSF fundraising program.
 
About Rett Syndrome:
Rett syndrome is a genetic neurological disorder that occurs almost exclusively in females. Rett syndrome becomes apparent after 6-18 months of early normal development. It results in a regression that leads to lifelong impairments. It is often misdiagnosed as autism or cerebral palsy and has no cure. Those inflicted with this disorder have no purposeful hand use due to their repetitive hand movements, hand wringing and mouthing. Speech is lost, seizures develop and scoliosis occurs. Irregular breathing patterns, hyperventilation and breath holding take place. More than half of the girls and women lose their ability to walk. Those diagnosed with Rett syndrome require maximum assistance with even the most basic daily activities. A girl is born every two hours with Rett syndrome. 
 
About The International Rett Syndrome Foundation:
IRSF is the world’s leading private funder of basic, translational and clinical Rett syndrome research, funding over $26M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world’s largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support, and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator’s most prestigious 4 star rating.