Please join us at Central City Park in Macon, GA for the 2nd Annual GA Strollathon! Last year we raised over $35,000 for Rett syndrome research thanks to all of our wonderful families, friends, sponsors and volunteers. We plan on surpassing last year’s totals in 2012! Please consider supporting one of our Georgia angels by clicking on their page below and donating in honor of all children with Rett syndrome.
We hope to see you there!
The Strollathon is the signature event of the International Rett Syndrome Foundation. It is a fun-filled event which raises crucial research dollars and public awareness of Rett syndromein communities across the country and even worldwide. The program has grown tremendously since the Inaugural event in 2002 and has raised nearly $6 million for research, family support and advocacy. The Strollathon program is the heart of the IRSF fundraising program.
About Rett Syndrome:
Rett syndrome is a genetic neurological disorder that occurs almost exclusively in females. Rett syndrome becomes apparent after 6-18 months of early normal development. It results in a regression that leads to lifelong impairments. It is often misdiagnosed as autism or cerebral palsy and has no cure. Those inflicted with this disorder have no purposeful hand use due to their repetitive hand movements, hand wringing and mouthing. Speech is lost, seizures develop and scoliosis occurs. Irregular breathing patterns, hyperventilation and breath holding take place. More than half of the girls and women lose their ability to walk. Those diagnosed with Rett syndrome require maximum assistance with even the most basic daily activities.