Rylee Skodras's Fundraising Page
Page Creator: Kristen Skodras
Event: Step Forward to Cure TSC - Guilford, CT
Event Starts: Jun 13, 2009
Team Name: Rylee
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About my nonprofit:
Tuberous Sclerosis Alliance
The mission of the TS Alliance is to find a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected. Your particiption plays an integral role in carrying out this mission....
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So far I have raised: $1,970.00
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My personal message:

 

Thank you all for all your generous donations.  We greatly appreciate it all your support.  Much thanks to Glen and the Providence Police Department and Mr. Moran from Mclaughlin & Moran for their donations and support.

 

At 3 days old, a heart mumur spurred the doctors to do an echocardiogram on Rylee.  We discovered she had three tumors (Rhabdomyomas) in her heart.  Rylee was diagnosed with Tuberous Sclerosis at 2mths old.  At 4 mths, Rylee started having Infantile Spams (seizures).  We then went to Boston to meet with a neurologist who specializes in TSC.  An MRI detected 1 tumor on her brain.  At an early age, Rylee was able to get the medical attention needed.  She is a typical 15mth old who enjoys reading books, playing with her baby dolls, watching Sesame Street and playing with her brother. 

Please help raise money for Rylee and others with TSC by supporting us on June 13th for a Step to a Cure Walk-a-thon in Guilford, CT.  Many doctors and researchers are working on a cure for TSC. 

 

 

 Thank you for visiting my Personal Fundraising Page. I hope you can support me and my family for the walk.   My parents have become actively involved in various ways supporting the Tuberous Sclerosis Alliance and learning about Tuberous Sclerosis.  Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!  Your donation means alot to me!

 

Love, Rylee


Online Sponsors to date:
Display Name Date  Comment
Anonymous 9/12/2009  
rob and jenn 6/13/2009 good luck today 
Kerri 6/13/2009 I love you Rylee 
Tommy, Diane, Emma, Stephen, and Derek : ) 6/9/2009 Enjoy the day! 
Randi 6/9/2009  
Susie and Michael Kelleher 6/5/2009 All the best to team Skodras!! 
Leo and Kelly Duffy 6/4/2009 Good Luck 
Gary, Lori, Sydney, and Lacey Ronkin 6/1/2009 Good luck 
allison ascher mike and connie turner 5/22/2009  
Laura Wishart 5/1/2009 Best of luck to Team Rylee!!!! 
* Total raised online: $880.00
Amount raised offline: $1,090.00
Grand Total: $1,970.00
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