Welcome to the Scleroderma Foundation's Firstgiving Page
The Scleroderma Foundation: The National Resource for People with Scleroderma
The Scleroderma Foundation is the national organization for people with scleroderma and their families and friends. It was formed January 1, 1998, by a merger between the West Coast-based United Scleroderma Foundation and the East Coast-based Scleroderma Federation.
Join Us!
We are a nonprofit membership organization with IRS 501(c)3 status, which means your donations to us are tax-deductible.
Basic membership dues of $25 per year entitle you to receive our quarterly magazine, Scleroderma Voice, and a discount on the registration fee for our annual National Conference. For information, please visit our membership page.
Contact Us
You can call us Monday through Friday, 8:30 a.m.–5 p.m. Eastern time, at our toll-free number 800-722-HOPE (4673) or 978-463-5843. If you call after hours, you can leave us a message.
You may also contact us through our Web site -- http://www.scleroderma.org/contactus.shtm -- in the "Contact Us" section.
Our Three-Fold Mission of Support, Education, and Research
Support: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.
Education: To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.
Research: To stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
While we budget over $1 million per year for new research into the cause and cure of scleroderma, we also consider the other two parts of our mission very important.
The Foundation offers numerous ways that you can help us. Here are a few:
- Join a "Stepping Out to Cure Scleroderma" walk near you.
- Host a "Cooking Up a Storm for Scleroderma" event.
- Support the "Scleroderma Striders" program by running in an event of your choice and/or donating to the program.
- Run your own event!
Learn more at http://www.scleroderma.org/development/events.shtm
