Our very good friends, Kim and Scott Kintner, have a 4 year-old daughter that was recently diagnosed with Cockayne Syndrome (CS).  Cockayne Syndrome is a rare genetic disorder characterized by poor growth, premature aging, cataracts, microcephaly, sensitivity to sunlight, and developmental delays.  Because of their multiple complex medical issues, children with this CS have a shortened lifespan on average of 4 to 7 years.  There are only 200-300 children in the WORLD with this rare genetic syndrome.

We have become very close with Mackenzie and her family.  She is an amazing little girl and we are blessed to have her in our lives.  In her honor, I am participating in the 2nd Annual Butterfly Walk on Saturday, October 3, 2009, at the Sanford River Walk/Fort Mellon Park in Historic Downtown Sanford.  There are 13 Sites across the country hosting walks on the same day to support this special cause and raise funds for the Share & Care Cockayne Syndrome Network.  The Share and Care Cockayne Syndrome Network is a 501(c)(3) worldwide support organization for families of children with Cockayne syndrome. Their goal is to raise awareness and support medical research for CS.  This organization provides much needed support to children and families dealing with Cockayne Syndrome.

I am asking for your help in the form of sponsorship - If you are able, please consider donating to this very worthy cause.  Donating through the website is simple, fast, and secure.  It is also the most efficient way to support my furndraising efforts.  Please feel free to contact me with any questions at (407) 221-0691 or stephaniebaker@cfl.rr.com.  Thank you from the bottom of my heart!

Stephanie and Family