The Fundraiser is back again!  Last year I was one of the first to create a firstgiving fundraising site for the Sturge-Weber Foundation. Now everybody's along for the ride. I'm so happy to see the awareness I have created has generated so many other pages and  has generated the money for the cause I am so passionate for. We raised 220 dollars to be precise, thanks to all of you! Every dollar counted and went straight to the foundation.

Now I'm back again, this year hoping to meet, and hopefully surpass my last goal. Again, I need all of your help. You are giving to an excellent cause and helping others just like me. You are helping fund research, conferences, and possibly one day a cure!

For those not familiar with my page, my name is Paul. I was born with Port Wine Stain, Sturge-Weber, and KT. All of these conditions are extremly rare and related to one another. Some people are less affected than I am, some are more severe. It's a never ending spectrum and within such a rare condition makes us all individual cases

About my specific case, I have glaucoma in both my eyes with limited sight, I have epilepsy and have leisions in my brain. I suffer from vertigo. I am bi-lateral Sturge-Weber which means affected on both sides of the face and brain. In fact, port wine stain covers 75 percent of me entirely. I have KT on my right hand and arm.

If you have any other questions, I would be happy to answer them. And don't forget to join my FaceBook cause. Just search for "Support Sturge-Weber Syndrome" then join. Like money, I am also trying to raise awareness and one person just like one doillar makes all the difference. Be sure to spread the word about my fundraiser and cause and an advanced thank you for your donation

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!