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Family and Friends,
First, thank you for visiting our fundraising page!
As you all know Zach has a complex medical condition involving multiple vascular malformations. This past year he had surgery for a Cavernous Angioma in his frontal lobe. While this is not his sole medical concern, we know he is a unique child with a unique medical condition. At any point in time his condition could change and as we search for doctors that are qualified and able to care for him we have found the research and understanding of his condition is limited.
What we are asking is for you to donate as little or as much as you can to the support group of the Angioma Alliance. This group has been wonderful in assisting us and providing support to us during this challenging year. In case you are wondering how you can help here are some examples of operating costs for the organization and how your donation could assist:
1. $15 sends one blood kit out to a new DNA/Tissue bank donor. Every new donor provides us with more resources for our researchers.
2. $17 pays for everything Angioma Alliance does for 1 hour.
4. $30 gets our newsletter out to 20 families, many of whom have no internet access.
5. $55 keeps our website up for 1 month which allows us to continue supporting each other on this forum as well as continue to provide information both to newcomers and old timers.
6. $100 pays for a one-day visit to Washington to talk with government officials about cavernous angiomas.
6. $150 pays for a room for two young researchers to attend our scientific workshop. Who knows - these may be the two who end up holding the key to a cure!
6. $200 keeps our toll-free support and information line and our internet access going for 1 month. As you can imagine, these are essential to fulfilling our mission.
7. $225 pays for meeting room, audio/visual expenses, materials, and food for 1 scientist attending our scientific workshop
8. $250 pays for meeting room, audio/visual expenses, materials, and food for one member attending our family conference.
As you can see every dollar counts! This is extremely important to us and to Zach. 1 dollar or more could make a huge difference in finding a cure for his medical condition. If you would like more information on the support group please visit the website: http://www.angiomaalliance.org/index.html
Thank you all for visiting and for all the support and love you continue to provide!
Tamara
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