Up With Downs of Pinellas is now the
Down Syndrome Network of Tampa Bay, Inc.
We have many new things in the works for our new venture.
Our new web-site is under construction right now and will be revealed soon.
The Down Syndrome Network of Tampa Bay, Inc.
Is a 501(c) 3 non-profit organization,
And an affiliate of both the
National Down Syndrome Society & National Down Syndrome Congress
Our Goal is to:
Empower parents of children with Down syndrome, young and old, by providing up-to-date information and resources. Pursue inclusion of individuals who have Down syndrome in all areas of life so they embrace opportunities to contribute and be valued members of society. Dispel myths, promote positive awareness, and emphasize abilities of people with Down syndrome to parents, educators, physicians, therapists, and the general public.
Please feel free to call us any time!
We are available by telephone seven days a week from
9AM until 7PM.
E-mail is also a great way to contact us or request information.
We check our e-mail several times each day.
We are available to meet with you by appointment.
We would LOVE to meet you and have you meet our kids!
Up With Downs of Pinellas was created by two parents in 1990 in an effort to provide support and education to other families who also had children with Down syndrome. Today we continue to strive to be a source of information and support to families, as well as working with medical and educational professionals to promote public awareness and encouraging a better understanding of Down syndrome and individuals with Down syndrome.
We have several primary purposes and programs:
· We have a support network that assists new parents with an
informational baby-packet, telephone contact, and personal visits.
· We assist all parents by networking them with other parents who
share the same medical, academic, legal or social needs.
· We hold an annual Buddy Walk to bring the community together in
celebration of Down syndrome.
· We work with medical and academic professionals to promote an
understanding of the capabilities of individuals with Down
· We provide social events to provide families the opportunities to
come together with other families.
· We publish a bi-monthly newsletter that provides up to date
information to our members regarding education, research, health,
family issues, advocacy opportunities, social events and much more.
· We maintain an active e-mail resource list that keeps our members
up to date and informed on happenings both local, and nationally.
· We maintain a web site to provide information to a wide audience.