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Jennifer Belston's Fundraising Page
Page Creator: Jennifer Belston
Event: 2008 Inaugural Butterfly Walk for Cockayne Syndrome - National
Event Starts: May 24th 2008
Team Name: Team Montana
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Tasha Belston
About my nonprofit:
Share & Care Cockayne Syndrome Network
Fundraising target: $2,500
So far I have raised: $1,290.00
Fundraising progress
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My personal message:
    Thank you for visiting my fundraising page for children with Cockayne Syndrome and their families!!
    My name is Natasha Belston and I am a very happy little girl that suffers from a rare genetic condition that leaves me unable to do many things that you can do.  My condition is classified as a type of dwarfism with mild to severe retardation, I can only be in the sun for a little bit or I will sunburn, I age very fast, also known as progeria, and they say that I do not see or hear well at all.  I do wear contacts to help with my vision, but do not wear hearing aids. I am unable to walk, talk, crawl, or even sit up on my own right now and I am 15 months old!!  They also say that our average life span for children with my syndrome is only 4-7 years. Although I have many complex medical issues in my life, I always smile and enjoy spending lots of time on the floor.  Thank you for reading about me and please consider making a donation to help support research, and educate people on this rare syndrome!!  I would love you to join us at our !st ever National Walk-A-Thon at Woodland Park in Kalispell MT on Saturday May24th at 10:00 am to walk with us and spread the word about Cockayne Syndrome and to just enjoy a great day with family!!   If you would like to talk to me please contact me at jenniferbelston@gmail.com
   

Online Sponsors to date:
Display Name Date Amount  Comment
Cecil McKinley 6/21/2008 $50.00  
Cecil McKinley 6/7/2008 $50.00  
Cecil McKinley 5/30/2008 $50.00  
Ty Fromm 5/24/2008 $50.00 Bless You 
Jamie Kober 5/23/2008 $50.00 Thanks for sharing Tasha with me!! 
Cecil McKinley 5/23/2008 $50.00  
Jennifer 5/16/2008 $50.00 For the most beautiful girl I've met 
ree 5/5/2008 $25.00  
MW and NS 4/29/2008 $10.00 For Natasha...we'll see you at the butterfly walk!  
Karlyn Gibbs 4/29/2008 $10.00 I'm looking forward to seeing you at the walkathon! 
Tonya Dalton 4/28/2008 $20.00 For Natasha - we'll see you at the walk! 
Brian & Chris 4/20/2008 $250.00 We love you B&C 
Tammy Miller 4/10/2008 $50.00  
Bobbi 4/9/2008 $50.00  
RB 4/7/2008 $100.00 I love you!! I can't wait to see your little smile again soon! 
M.C. 4/7/2008 $25.00 Thinking of you and your family! 
Grandma Dee 4/7/2008 $100.00 for Tasha and all the CS kids, love Grandma Dee & Grandpa Bill 
* Total raised online: $990.00
Amount raised offline: $300.00
Grand Total: $1,290.00
Page tags children with cockayne syndrome
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