My name is Tasha, and I have Cockayne Syndrome type 2.  I am 2.5 years old I have a very loveable personality, I enjoy everyone around me as long as you will pay attention to me.  I eat through a feeding tube in my tummy, and spend two days a week at therapy but I love it. The doctors say that I will only live to be about 7 years old, but what do they know!  We need to raise money for awareness and research for us kids with Cockayne Syndrome because it is a very rare genetic disorder that is hard to daignose and yet so important.  Please help these families by donating and come walk with us at Woodland Park at 11 am on Saturday, October 3rd.  Thank you so much for all of your support.  If you would like to learn more about myself and other children with Cockayne Syndrome or just more about this condition please visit  www.cockaynesyndrome.org   Thank you

                                                                Belston Family