Team Mackenzie Kintner Fundraising Page
Page Creator: Kim Kintner
Event: 2009 Butterfly Walk for Cockayne Syndrome - Florida
Event Starts: Oct 3, 2009
Team Name: Team Mackenzie Kintner
Training buddies: Brayden & Marissa Kintner
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About our nonprofit:
Share & Care Cockayne Syndrome Network
Fundraising target: $5,000
So far we have raised: $6,075.00
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Our personal message:

Our daughter Mackenzie was recently diagnosed with Cockayne Syndrome after 4 years of searching for answers. Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, premature aging, microcephaly, sensitivity to sunlight and developmental delays just to name a few. Because of the multiple complex medical issues children with this syndrome have a shortened lifespan on average (4-7 years).  There are only 200-300 children in the World with this rare genetic syndrome

For those of you that have met Mackenzie know she is a true angel.  Her simple smile lights up a room.  She is a true blessing to us, and we are honored to have her in our lives.
 
The Share and Care Cockayne Syndrome Network is a 501(c)(3) worldwide support organization for families of children with Cockayne syndrome. This organization provides much needed support to children and families dealing with Cockayne Syndrome.  Its goal is to also raise awareness and support medical research.
 
The 2nd Annual Butterfly Walk is a walk-a-thon event aimed at raising funds for Share & Care Cockayne Syndrome Network.
The walk will be held on Saturday, October 3rd, 2009 at SanfordRiver Walk / FortMellonPark, in Historic Sanford, Florida. The start of the walk will be at FortMellonPark.
 
Please register by September 24th, 2009 to confirm your shirt order. Walk day registration starts at 4pm, and the walk begins at 4:30pm
 
Please join my family in our commitment to help families and children living with this devastating syndrome. With your help we can and will make a difference in the fight for Cockayne Syndrome research and awareness.
 
To Register for the Walk or Make a Donation Please Visit: http://www.firstgiving.com/teammackenziekintner
 
If you have any questions, contact Kim Kintner at: 407-616-7220 or kbnsk1@aol.com

Online Sponsors to date:
Display Name Date  Comment
Paulding Family 10/5/2009  
Gerie & Scott Vogt 10/5/2009 I am sorry we missed the walk - we were out of town. 
Stefanie and Keith Macfarlane 10/4/2009  
The Beare Family 10/3/2009 We'll be there!! Looking forward to it.... 
Kristy and Mia DeJesus 10/3/2009 We wereunable to attend today but are thinking of you & hoping today was a huge success! 
The Whiteman Family 10/3/2009  
Stromberg Family 10/3/2009 We will be there! Blessings to your family. 
Tracy Demetree 10/3/2009 We are very excited about today! 
Mike & Alisa Molloy 10/1/2009 Kim......Thinking of you and your family. 
The Reinhardt Family 10/1/2009 Kim, We were very sorry to hear about Mackenzie, our thoughts are with you. Good Luck with the Walk! 
Chapman Family 9/29/2009  
anne rue interiors, inc 9/29/2009  
Gretchen Shaughnessy Arnoczy 9/27/2009 Thinking of you and your family! 
Heinz & Angela Porth, Gabriella,Emma-Grace, Rainer 9/25/2009 Truly glad to help out such a precious child! 
Cassie and Meredith Stewart 9/24/2009  
Jay, Sue, Julia and Jack Porter 9/23/2009  
Rob, Kim, and Luke Fayard 9/23/2009 We love you all, so much. 
Merritt Family 9/23/2009 LOVE THIS FAMILY!!! Thank you for welcoming me into your home for so many years! 
The Domino Family 9/22/2009  
David, Becky, and Gavin Gazdak 9/21/2009  
Marie Purucker 9/21/2009 Good Luck! 
Stephanie, Wayne, Tyler, Megan & Katie Baumgartner 9/19/2009  
Jason and Renee Albu 9/18/2009  
dayna heusel 9/18/2009  
Bob Daily 9/16/2009  
Thom Adams 9/14/2009  
Dana, Duane, Chance, and Kaia Fitzgerald 9/13/2009 We are looking forward to walking with you on the 3rd! 
The Schofield Family 9/13/2009  
Amy, Alan, Ansley and Adaline Smith 9/11/2009 We may not be able to make it to the walk but we'll be thinking of you! 
Sarah & Phil Geha 9/9/2009 We're sorry we can't attend, but are hoping you meet your fundraising goal & are happy to donate. 
Linda Snyder 9/9/2009  
Lynda Anderson 9/6/2009 For a precious little girl and her loving family. 
Lisa Brandon 8/31/2009  
Ben, Lily & Charlie Mark 8/30/2009 Sorry we can't be there to walk with you. We'll be there in spirit! XO 
brent and vicki jones 8/27/2009 God bless you MacKenzie and family. 
The Sosa Family 8/27/2009  
The Timmons Family 8/26/2009 For a sweet little angel we love so much! 
Phillips Family 8/26/2009  
Keith Freda and Family 8/25/2009 Good luck with the walk and I hope you reach your goal, god bless.  
Ashlee Dozier 8/24/2009  
Amy Powell 8/24/2009  
Two Eggs Janitorial & Maintenance 8/23/2009 Your Mom & Dad have been really great friends to us-good luck! 
Deborah and Joshua Lenchus 8/21/2009  
Hope Powers 8/20/2009  
John Spears 8/20/2009  
Candy Goodchild 8/20/2009  
David Palmer 8/20/2009  
Tiffany Sherrill 8/20/2009  
Kyle and Sarah Bono 8/19/2009 For a special little girl! 
Mike & Sheila Bono 8/18/2009 In support and love to our granddaughter 
The Gottlieb Family 8/17/2009  
Jaidyn Holt 8/16/2009  
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* Total raised online: $3,220.00
Amount raised offline: $2,855.00
Grand Total: $6,075.00
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