Thanks for visiting Team Rausch's fundraising page.
Did you know that every day 115 babies are born in this world with Neurofibromatosis? Yet we do not have cures or many treatments for NF. There are many hopes of cures across the U.S. How can we make a difference? We need to be seen and heard. We need to continue to fundraise to insure government funding and private research to continue.
That is what Team Rausch will do this year, be seen and heard...in the Grand Rapids River Bank Run (May 9), in the Dexter Ann Arbor Run (May 31) and who know where else. Support us financially if you are able, or help us by fundraising, walking, running or cheering us on. Avery and I (who are impacted with NF2) and the rest of Team Rausch appreciate anything you can do.
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 3,000 to 4,000 births).
NF has two genetically distinct forms: NF-1 and NF-2. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for either form of NF, although the genes for both NF-1 and NF-2 have been identified. NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he cannot pass it on to his/her children.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support our fundraising efforts. But if you would prefer to write a check, make it out to "Neurofibromatosis, Inc" and mail it to me. I will forward it.
Thanks again for visiting our page.
Love, Terri