Aiden's Legacy

Thursday, December 22, 2016


Welcome to Aiden's Legacy Fundraising site!

In March 2013, Aiden’s family created Aiden’s Legacy as a way to give back to the community. They partnered with the Children’s Hospital Foundation with a mission to educate the public on pediatric childhood cancer, raise research dollars for the Addison Jo Blair Cancer Care Center at Norton Children’s Hospital and collect and distribute Legos to kids with cancer. All funds raised go directly to the care and support of patients and families at Norton Children’s Hospital. The team raises funds to support programs, services, research and staffing in an effort to accomplish Aiden’s goal of “helping other kids forget they have cancer.”

On Feb. 20, 2007, at age 2, Aiden came home from day care with a mild fever and swollen lymph nodes in his neck. Thinking he might have tonsillitis, his mother made an appointment with his pediatrician for the following day. Aiden’s doctor, Richard Boada, M.D., looked him over and took a blood test. After receiving the results, Dr. Boada said he thought his blood testing machine was broken and sent Aiden to the hospital to have the blood test redone. Another finger poke and tube of blood later, the hospital ran the test and asked to redo it using blood from a vein instead of a finger.

Dr. Boada called Aiden’s family that evening and explained that he and the oncology team at Norton Children’s Hospital believed Aiden had leukemia. Aiden needed to get to the hospital right away. The emergency department doctors at Norton Children’s Hospital confirmed that Aiden had high-risk acute lymphoblastic leukemia. His white blood cell count was extremely high at 232,000; normal is 4,000 to 12,000. Over the next 3 1/2 years, Aiden had a procedure called apheresis, three central line placements, chemotherapy treatments, numerous lumbar punctures, countless blood and platelet transfusions, finger pokes two to three times a week, bone marrow aspirations and lost his hair, but he was a strong, brave little boy through it all. Aiden received his last chemotherapy treatment on his sixth birthday — and what a celebration he had! Aiden went to kindergarten and first grade as a healthy, happy little boy. Then in July 2012, at the age of 8, his cancer returned. He had been in remission for five years, and off treatment for two. Life was once again turned upside down. Aiden was placed on an intermediate-risk therapy treatment, which required him to receive an additional two to 2 1/2 years of intense chemotherapy treatments. Aiden was admitted to the hospital right away and had his fourth central line placed. He had two testicular biopsies and suffered a blood clot that required having part of his stomach lining removed. He currently endures two to three injections daily, lumbar punctures and two to three finger pokes a week. He takes 12 to 15 pills daily, has lost his hair twice, receives frequent blood and platelet transfusions, and almost always receives his chemotherapy treatments as an inpatient at Norton Children’s Hospital. Aiden is home-tutored to help him keep up with his classmates. He loves music, singing and dancing, but his favorite activity during his fight for life is building with Legos.