Imagine receiving news about your health-or the health of a loved one- that will impact you for the rest of your life. You have a bleeding disorder. Your career, hobbies, where you live, family planning, and many other life decisions are now all affected. Your doctor can prescribe a treat regimen, but where do you turn for help and support in between office visits. Who has the most relevant experience or practical knowledge to help you navigate life with a rare and life threating chronic disorder?
Being part of a community that shares experiential knowledge often mean the difference between effectively managing a chronic disorder like Hemophilia or von Willebrand Disease, or being debilitated by it. Patient education, public awareness, support and advocacy for those affected are the principals at the core of our organization. We are Hemophilia of South Carolina (HSC), and we would love to have your support!
Hemophilia and other bleeding disorders are rare and the occurrence of knowing someone in your lifetime with the same disorder is highly unlikely. HSC provides individuals and families affected by bleeding disorders a support system to learn and network with others in the state who are also affected, helping them to develop a stronger support system that will benefit the emotional health of individuals within the family unit. Having a bleeding disorder can be an extremely isolating experience and the feelings of knowing you are not alone in this chronic health struggle are unmatched in importance.
To be recognized as a leading organization providing valued services; as ambassadors of public outreach to enlighten and foster an understanding of what matters most to those affected by hemophilia and bleeding disorders; and to be our community’s first choice in partnership to achieve their highest potential through empowerment, connection to their community and being part of the solutions that affect them the most, until a cure is achieved.
About Hemophilia of South Carolina
Hemophilia of South Carolina (HSC) is a 501 (C) 3 Non-Profit organization and a Chapter of the National Hemophilia Foundation (NHF) and a Chapter Member of Hemophilia Federation of America (HFA). HSC was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations. The organization for over 40 years existed as all-volunteer; providing programs and education, support and advocacy for access to care at the states capitol.
We serve all 46 counties in the state, currently providing education and support services to over 700 members and their families in 38 counties. We provide the most current information and education in topics related to bleeding disorders, treatment therapies, support services and advocacy. We provide financial assistance, scholarships, camping opportunities for families, children and teens, support groups and advocacy training. By bringing families together, members can learn from oneanother the important experiencial knowledge only they can provide.
By joining our fundraisers and events, you are helping to provide needed services, supporting research and making a difference in the lives of our community. We rely on a strong volunteer community and generous donors. Thank you!
For Information to Contact us:
Hemophilia of South Carolina