Alan Sarto's Page

NATIONAL ORGANIZATION FOR RARE DISORDERS, INC.

2015 Running for Rare Diseases Team!

Boston, Massachusetts

Alan Sarto's Page

Thank you for visiting my fundraising page!

I wanted to share with you what I have become involved in this spring.  I have joined the Running for Rare Diseases Marathon Team.  (www.running4rare.org/home).  What started 7 years ago as a few runners from Genzyme (Sanofi) participating in the Boston Marathon, has now grown to over 100 runners participating in the Providence and Boston Marathons this spring.  Over the years, the team has raised nearly $500,000 for the National Organization for Rare Disorders (NORD).  NORD is a non-profit organization based in Boston, MA that provides advocacy, education and other services to improve the lives of all people affected by rare diseases. Read more about NORD here.

I consider myself active, but I am not an avid runner and have never run a ½ marathon, never mind a full one, but when presented with this opportunity to give back, I couldn’t pass it up!  The amazing part of this effort is that each runner (or often times, pairs of runners) are matched with a patient partner - someone currently living with a rare disease or someone closely affected by a rare disease.  My co-worker Mark Genest and I are paired up with Katie Brandt and her 6 year old son Noah, (picture attached).  Katie lost her husband Mike, Noah's Dad, to the rare disease Frontotemporal Degeneration (FTD) almost three years ago.  Katie and Noah are truly amazing and inspirational, Katie has been heavily involved in advocacy, education and fundraising efforts the past 3 years, please take a minute to visit her website at www.KatieBrandt.org and read her story.

So, I have begun my training to run the Providence Marathon on Sunday May 3rd and I would greatly appreciate any support you can offer, whether it’s running tips, a running partner, cheering on race day, or a donation to my fundraising efforts at https://www.firstgiving.com/fundraiser/AlanSarto/2015-running-for-rare-diseases-team.

Thank you and wish me luck!

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