Hi my name is Alexandra and I am a 23 year old living with Huntington's Disease. Huntington's Disease has been apart of my life for as long as I can rememeber. I lost my dad at 14 years old to HD, I have lost an uncle, aunts ,and many more in my family who suffer. I have a sister who is at risk, as well as many cousins. I do not let HD get me down, I continue to fight the fight.
My HD keeps me from not being able to do things that I have always done. I have physcially hard days where I feel differnent because of my body movements, being off balnace, and having trouble walking. I do every thing in my power not to let it get me mentally, but it does affect me cognitively.
I do everything I can to stay postive and hopeful. I take in the good moments more often. I love on my nieces and nephews more. I thank my family and friednds for being a part of my life. I get up each day and just live despite my HD.
I always say that I have learned I can not do it alone. I wouldn't be here without my support system of famiily and friends. I need your help and support in order top find a cure. I will be walking for a cure of HD and I can't do it alone. I need your help to find a cure and to fight the good fight! I have hope and faith.
Thanks for considering,