Alex Boothby's Page


Team Hope Walk - Boston, MA

South Boston, Massachusetts

Alex Boothby's Page

 Hi my name is Alexandra  and I am a 23 year old living with Huntington's Disease. Huntington's Disease has been apart of my life for as long as I can rememeber. I lost my dad at 14 years old to HD, I have lost an uncle, aunts ,and many more in my family who suffer. I have a sister who is at risk, as well as many cousins. I do not let HD get me down, I continue to fight the fight.

My HD keeps me from not being  able to do things that I have always done. I have physcially hard days where I feel differnent because of my body movements, being off balnace, and having trouble walking. I do every thing in my power not to let it get me mentally,  but it does affect me cognitively.

I do everything I can to stay postive and hopeful. I take in the good moments more often. I love on  my nieces and nephews more.  I thank my family and friednds for  being a part of my life. I get up each day and just live despite my HD. 

I always say that I have learned I can not do it alone.  I wouldn't be here  without my support system of famiily and friends.  I need your help and support in order top find a cure. I will be walking for a cure of HD and  I can't do it alone. I need your help to find a cure and to fight the good fight!  I have hope and faith. 

Thanks for considering,



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