Friends and Family,
This year I am excited to be a part of the Running for Rare Diseases Team, not only as the dad of a patient parter with a rare disease, but also as a runner. I'll be participating in the Providence Marathon on May 3, 2015 as a member of the team. Although I'm nervous about the training commitment, the stability of my back, and the frankly the thought of running 26.2 miles, I'm thrilled for the opportunity to run for Will's cause. For those who have met him, you know that Will is a great kid who deserves a long, healthy life.
Please support Will and my run by donating to NORD, The National Organization for Rare Diseases.