Thank you for visiting my fundraising page for LEWY BODY DEMENTIA ASSOCIATION INC!
I will be competing in the Arizona Ironman 2013 to raise money and awareness for Lewy Body Dementia (or LBD). I am doing the Arizona Ironman on Sunday,November 17, 2013 in Tempe, Arizona. It is a 2.4 mile swim, 112 mile bike, and a 26.2 mile run which starts at 7AM and must be completed by midnight (17hrs).
I am doing this Ironman as a way to celebrate my Dad's life and to raise money for a devestating disease that has personally affected both me and my family.
Below is my mom's story about my Dad's struggle with lewy body dementia:
"My husband Jim died in 2012 after being diagnosed two years previously with a frontal lobe dementia. We did not know until after the autopsy that he had Lewy Body Dementia.
How sad for us to watch a beloved parent and spouse gradually become paranoid, lose over 30 pounds (from a healthy weight of 175), lose all interest in everything, become reclusive, turn into a stooped-over, shuffling old man. To be succinct he had a complete personality and physical change.
When we look back trying to pinpoint when signs of the disease began to appear, we realize now that very subtle and almost imperceptible changes were noticed as many as six years prior to Jim’s death. For example, Jim would make off-the-wall one liner statements that made no sense, but I attributed these non sequitur as my hearing them incorrectly. When there was a lack of interest in previously enjoyed interests, we did not pick up on or question the reason. Friends would note to themselves that something was not quite right with Jim, but with busy lives they said nothing to the family until later on in the disease process. Jim was known as a “people person” but the disease made him hide from friends who came to visit. Jim loved to read. In fact two years before he died he read a 500-page book on Meriwether Lewis and wrote a two page synopsis of it. He never read again after that! Jim had driven cars and motorcycles since he was eleven years old, but he just stopped driving before it became an issue.
Towards the end, when Jim was still talking, I asked him, “What are you afraid of?” and he said, “Of living like this.” He could still express his love and thanks for the care received from his family.
We now find it amazing how Jim could pull things together so that people didn’t realize just how sick he was. But that mental energy would take its toll, and he would fall soundly asleep early in the evening. Towards the end, Jim would sleep 18 out of 24 hours.
We wanted to keep Jim at home and with the help of family, extended family, and hospice, Jim died peacefully at home surrounded by me and our three daughters.
While training and competing in the Ironman, I am constantly thinking about my Dad and how he lived his life with dignity and honor. He was constantly humble and always helping others. In the tradition of my Dad's legacy,I hope to raise awareness for LBD as well as provide vital funding to continue to support the research and treatment of Lewey body dementia (LBD)
LBD is an aggressive form of degenerative dementia that today medical science knows relatively little about, with no known cure. It is often misdiagnosed due to its similar symptoms to that of Parkinson’s & Alzheimer’s, yet it is the second most common form of degenerative dementia after only Alzheimer’s. It is estimated to impact over 1.3 million individuals and their families in the United States alone. To learn more about this type of dementia, visit http://www.lbda.org/content/10-things-you-should-know-about-lbd.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Thanks for joining me in celebration of my Dad's life and raising awareness for LBD.
To track me on November 17, go to www.ironmanlive.com and click on athlete tracking. Enter my full name, Christina Mabie, or my race number 1219. It should let you know every time I cross a timing mat- at the end of the swim, several times on the bike, and several times on the run. There should also be a finish line camera so you can watch me cross the finish line