Thank you for visiting my fundraising page!
I am priviliged to have been selected to be a part of the Genzyme Running for Rare Diseases Marathon Team. The 2015 team is comprised of over 100 members who will be participating in the Boston, Providence, and Paris marathons. As for me, I will be running the Boston Marathon on April 20th.
The Running for Rare Diseases Marathon Team also participates in a patient partnership program. Together there are 93 runner/patient partnerships representing 58 rare disease communities. This is a record for the team! To read more about the running team, patient partnerships, events and to subscribe to our blog, please visit: www.running4rare.org
I am partnering with the Foster Family, who represent the Undiagnosed Diseases Community. I will be running in memory of Stephanie Foster, who lost a courageous battle to a degenerative disorder for which there was no diagnosis. I'm sad that I never got to meet Stephanie, but her story is illustrative of challenges faced by those who have a rare or undiagnosed disorder. You may learn more about Stephanie's story by visiting the link below and by watching the YouTube video posted here: I think you will agree that Stephanie demonstrated a lot of courage, determination, and selflessness during her life, and her story is truly inspiring!
All funds raised by the 2015 Running for Rare Diseases Marathon Team will support the National Organization for Rare Disorders (NORD), a non-profit organization that is committed to identification, treatment and cure of rare disorders. There are nearly 7,000 rare diseases affecting nearly 30 million Americans (www.rarediseases.org). In particular, your donation will support the Genzyme/NORD National Institutes of Health (NIH) Undiagnosed Diseases Program (UDP) Fund, which will pay for medical testing for people with undiagnosed medical conditions who cannot afford the basic medical tests needed to make them eligible for the NIH program.
My personal goal is to raise $3,500 for this fund. I hope that you will be able to support me, and every penny counts. Donating through this website is fast and secure. Also, check whether your company matches charitable donations. Sanofi matches $50 or more by clicking this link: http://intranet-us.sanofi-aventis.com/intranet-us/Tools/tools_detail.page?id=ft0b7sv3
I thank you all for your support. I am excited about what our team is doing and I hope we will make a difference in bringing awareness and raising money for rare and undiagnosed disorders.