Thank you for visiting my fundraising page! I will be running the Providence, RI marathon on Sunday May 3rd in support of the "Running for Rare Diseases" Team, and my Patient Partner, Noah Brandt.
One in ten people have a rare disease so chances are you know someone with one. There are over 7,000 rare diseases that have been identified. But there are more that have yet to be identified, and patients with these disorders go from doctor to doctor looking for someone who can tell them what they have. Running for Rare Diseases seeks to make people aware that there are many people living with a rare disease, and they have found ways to carry on with their daily lives, sometimes with great difficulty. To be able to run on behalf of these folks is indeed a priviledge.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. My initial goal is to raise $100 per mile run.
Thank you for your support -- and don't forget to forward this to anyone who you think might want to donate too!