Thank you for visiting my fundraising page!
I am honored and privileged to have been given the opportunity to represent my Patient Partner with a Rare Disease (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy-CADASIL) and most importantly raise awareness/support of her condition. As you know, sympathy alone doesn't lead to cure rather funding research to find the cause is the only way. As part of the Running for Rare Diseases team, we are raising money to support NORD, the National Organization for Rare Disorders. Specifically, our funds are directed to the Genzyme/NORD NIH Undiagnosed Diseases Program (UDP) to help those who are undiagnosed pay for testing. With your help I strongly believe we can make a difference in people’s lives.
I truly appreciate your support and I will work hard to train and complete the Marathon in order to fulfill my obligation.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
If you have a matching program in your own company or organization the following information will be needed to take advantage of the same.
National Organization for Rare Disorders, Inc.
55 Kenosia Avenue
Danbury, CT 06813
Tax ID: 13-3223946
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!