Friends and Family,
This year, for the fourth year in a row, I will be taking on the challenge to run the Boston Marathon on Monday April 16, 2012. Along with 12 other Genzyme employees I am running to raise money for the National Organization for Rare Disorders (NORD). NORD is a federally registered not-for-profit organization (TAX ID 13-3223946).NORD is the consumer organization that advocated for enactment of the Orphan Drug Act of 1983. They monitor implementation of the law, especially encouraging research and development of new treatments for rare “orphan” diseases. Ninety-five cents of every dollar donated to NORD directly supports programs and services for patients and their families. Often, these are diseases so rare that no other source of funding is available.The Genzyme team has raised more than $125,000 over the four years running for NORD. Please help us make this year just as successful. No donation is too small. We appreciate your support.
It is both a privilege and honor that I will run as part of this year’s Genzyme Team. Once again, this year I have been paired with a patient partner. In fact, I will be running for two patients, Gail and Steven. Gail is a patient living with systemic mastocytosis. She is an enthusiastic advocate for education and awareness about mastocytosis. I have been touched to hear her story and her struggles with living with this disease. Secondly, I will be running for Steven, a father of one of my good friends. Steven has Multiple Sclerosis, and through him I have learned about the struggles that MS patients experience on a daily basis. I have been humbled again this year by the experience that my patients live through and it is a reminer why I run in the Boston Marathon for NORD.
I have personally committed to raising a minimum of $2500 as a participant on the Team in support of NORD. The Team will be holding several fundraising events throughout the winter including a torch relay on Rare Disease Day – February 29, 2012 from Framingham to Waltham to Allston to Genzyme Center. You can read about these events and information from year’s past at: http://runningforrarediseases.org/.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!