Stroll for Hope / SOFT

SUPPORT ORGANIZATION FOR TRISOMY 18/13 - S O F T INC

Stroll for Hope / SOFT


Stroll for Hope / SOFT

The Budd Zoo will be attending the SOFT Conference in Chicago in July.  Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) is a nonprofit volunteer organization offering support for parents who have had or are expecting a child with a chromosome disorder (especially Trisomy 18 and Trisomy 13), and education to families and professionals interested in the care of these children. 

As part of the conference, we will be participating in a Stroll for Hope event to raise money for SOFT. We are taking pledges/donations for our stroll around HOPE Hospital in Chicago, IL to raise money for SOFT. Thanks to SOFT, our family has received a scholarship to help us attend the event, and we want to be able to give back!  They often help families new to SOFT in this manner.

 

My plug for supporting SOFT (trisomy.org):

I encourage anyone facing a journey with a SOFT child to join this organization because they provide help and support for families, have medical advisors who are experts, have books available for care of trisomy kids, provide a quarterly magazine (SOFT Times) full of informative articles, life experiences, practical information, summaries of latest research articles, tons of inspiring pictures of living and thriving children, and much more.  They have a new family packet that is amazing.

Most important - this is a volunteer run organization! Even the medical advisors are volunteer. All money donated to SOFT goes to subsidize conference costs, create informative materials for families, education opportunities, support of trisomy-related studies, and so many other good programs! It DOES NOT pay for salaries or projects in conflict with the purpose of the organization.

I have found their materials to be awesome resources for our family and for Rebekah's doctors. The books include info like typical problems, recommended medical treatments, and growth curves for trisomy kids.

Thank you for your love and support of Rebekah, and children like her!

Love,

The Budd Zoo
Michael, Susan, Elijah, Jeremiah, Isaiah, Josiah, and Rebekah

 

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Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

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$1,000
goal
$395
raised
40%