You have what? What is it? How do you spell it? Answers to these questions had to be explained to my family, friends and even nurses. Sjogren's is an autoimmune disease affecting my moisture glands. My symptoms are dryness of skin, mouth, nose, and eyes along with fatigue and joint pain.
A doctor referred to Sjogren's as a "nuisance rather than a serious disease"; however, my mouth, parotid glands, ears, nose, throat and skin were (and are) constantly dry. Then I developed Non Hodgkin's Lymphoma, shingles and H. Pylori. For me, and for many others, Sjogren's is far more than just a nuisance!
The blessing is that I've become a much stronger person dealing with Sjogren's and its complications. I have my faith and all of you, my family and friends, to thank. You have been with me every step of the way, and I sincerely thank you.
Sjogren's is still unknown to many people. Funds are needed for new research to understand the complexities so that the cause and cure will be discovered.
Sjogren's Syndrome Facts:
Sjogren's affects up to four million Americans
Nine out of ten Sjogren's patients are women
It can spread throughout the entire body causing joint pain, major organ failure, and lymphomas
Please join Carol's Cherubs during the first walkabout in Connecticut. This walkabout focuses on awareness of Sjogren's Syndrome while helping to raise money to support the SSF's research and education programs.
Saturday, June 13th, 2009
Westfield Mall (Border's Entrance)
8:30 a.m. registration / 9:30 a.m. walk
My dream is to find a cure in my lifetime. Please support me by walking with Carol's Cherubs and/or by donating to The Sjogren's Syndrome Foundation either online or mail a check payable to SSF directly to me (58 Seneca Drive, Meriden, CT 06450)
Thank you, dear family and friends, from the bottom of my heart.
PS: Yes, you are my cherubs, my angels.