Congenital Diaphragmatic Hernia Awareness in memory of Shane

CHERUBS - THE ASSOCIATION OF CONGENITAL DIAPHRAGMATIC HERNIA RESEARCH, AWARENESS AND SUPPORT

Congenital Diaphragmatic Hernia Awareness in memory of Shane


In memory of Shane Torrence

Congenital Diaphragmatic Hernia Awareness in memory of Shane

Shane Torrence

1/28/93 - 9/11/99

 

Shane was born with Congenital Diaphragmatic Hernia, a rare birth defect that affects 1 in every 2500 babies.   After spending his first 10 months in the PICU at Duke, Shane came home on a ventilator, oxygen, feeding tube, trach and more.   He overcame great odds and even regained his hearing and sight when the doctors said it was impossible.  He came off the ventilator, learned to walk and use sign language.  He was a true miracle.   Shane was lost to a rare complication in 1999 at age 6 and a half years old.

Our family honors Shane's memory by volunteering and contributing to CHERUBS in his memory.  CHERUBS is an amazing charity founded in 1995 by Shane's mom that now has over 1600 members in 38 countries.   CHERUBS helps families by offering support, information and research.   It is run totally by volunteers on donations alone with no federal or grant funding.   All services are free to families affect by CDH.

CHERUBS - http://www.cdhsupport.org

Congenital Diaphragmatic Hernia Research - http://www.cdhresearch.org

Shane's Site - http://www.shane-torrence.com

Shane's Story - http://www.cdhsupport.org/members/viewtopic.php?t=502

 

 

 

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Congenital Diaphragmatic Hernia Awareness in memory of Shane
Shane Torrence