Thank you for taking the time to visit my fundraising page. Most of you know that I have had the official diagnosis of Lupus since 2001 but have had symptoms from as far back as 1996. I was very fortunate that my Lupus was relatively quiet until March 2008. From that point, my Lupus has been out of control and has really affected my entire life and family. My lupus went from being minor joint pain to attacking my autonomic nervous system, my central nervous system and lungs, along with causing pericarditis, extreme photosensitivity, severe fatigue and severe joint pain; often making it nearly impossible for me to function and take care of my young children.
Lupus is now affecting my entire family, which makes me very angry. My disease activity could be so much worse though and that makes me one of the lucky ones. Because of Lupus research I have recently started on a new medication that is slowly stabilizing my Lupus and helping me to gain my life back.
I am extremely lucky to have such a terrific support system which also makes living with Lupus much more bearable. My husband, Conor, is always there for me and without him I don't think I could do this. My family and long distance friends offer me so much support through phone calls and prayers. I also need to thank all of my mommy friends here on LI who are so willing to drop everything and help me at a moment's notice. Thank you to all of you as without you I would not have made it this far and have been this succesful.
The Lupus Alliance of America LIQ`s Affiliate`s, Walk-Along for lupus is the first and longest running, Lupus walk On Long Island, and the only Lupus Walk on Long Island that raises funds both for research as well as to help support the individual living with lupus by providing financial, supportive, and educational programs.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. To learn more about Lupus, the Lupus Alliance and the Walk-Along for lupus you can visit www.lupusliqueens.org.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too! You can also tweet my page on Twitter, share it on Facebook, post it as a bulletin on myspace, or post it on Digg.com. Even if you can’t donate, please take a moment to pass this page on to everyone you know and help us spread the word about lupus, what it is, what it is like to live with it, and how we all can help!
The monies collected at the Walk-Along for Lupus go directly towards funding the Lupus Alliance of America LIQ`s Affiliates support groups, telephone counseling service, financial assistance program, kids program, educational seminars, and more, as well as to novel research into the cause and cure for lupus.
The Lupus Alliance of America LIQ Affiliate`s Board Members and small staff, who have been working hard for those living with lupus for over 55 years, all have a personal connection to lupus. Whether they have lupus themselves, or love someone who does, their dedication to the cause is not just professional, it’s personal. Our fight is their fight! Our struggle is their struggle! So please, help us and join the fight, by donating to my page today!! Thank you!