Dear Family and Friends,
Thank you for visiting our fundraising page!
Reagan was born a happy healthy baby in February of 2008. She was always smiling and such an easy baby. She hit her milestones within normal range for the first 10 months, but it was always on the later side of the range. It was around 10 months that we started to notice that she was not hitting her milestones as quickly but mostly that she seemed to have no interest in stacking objects or putting things in and taking them out. We voiced our concerns to her Pediatrician at her 12 month well-check but we were told not to worry, all babies develop differently.
We spoke to a new Pediatrician at her 15 month well-check visit because she had only just begun taking steps. She asked us if Reagan could follow simple one-step instructions, make hand gestures like waving, say words (she lost her words at 14 months), or mimic behaviors. All of these answers were a "no" and we then realized that there was a big problem. We immediately contacted Early Childhood Intervention and she began receiving services for Speech, Occupational and Physical Therapy and has continued since. We found out a month before her 2nd birthday that she has Rett Syndrome. The news was devastating for our family as we read online how it would change our daughter’s life. But, it did not take us long to realize that she is the same precious, beautiful little girl that she has always been!
We are organizing a Strollathon in Austin on Saturday, September 18th as part of the 2nd Annual Texas Strollathon fundraiser. There will a 1 mile roll & stroll around the park, refreshments, a inflatable bounce house, and a silent auction. We hope that you will be able to join our cause to honor our beautiful daughter, Reagan, and all the wonderful girls (and boys) with Rett Syndrome.
Dawn, Wes, Reagan & Lauren