Thank you for visiting my Personal Fundraising Page. Donating off line is acceptable. However, donating through this site is totally secure, and is an easy way to make a contribution to our fundraising efforts.. Many thanks for your support -- and don't forget to share this with anyone who you think might want to donate too!
The picture is of Gerri on her 44th birthday, a birthday she thought she would not see when she was a teenager. Families dealing with HD know these feelings only too well. But, Gerri has seen many since her teen years, and it was a happy day because she was celebrating with most of the family. But she missed having a niece and nephew present.
The day also brought some bitter-sweet memories for me as Gerri is closer to the age that her brother and father were when we lost them because of Huntington's Disease (HD).
Because of these family ties, and the many other HD families I have met over the years since learning about HD, I am again working with the wonderful HD Support Group we have here in San Antonio toward our 5th Annual Team Hope Walk on September 11, 2010. Your support in the form of a donation will help make a difference in the lives of many HD famiies.
The gene that causes HD is required for birth to take place, so everyone has that gene. Many people have the gene in the abnormal range which causes them to have Huntington's Disease. We don't know how many people have the gene in the "Normal Highly Mutable" range, where the person doesn't have HD, but due to mutation when the sperm or egg is formed, their child will be the first in that family to have HD.
HD strikes from birth to death. The youngest I have heard of being tested is 6 months and the oldest I have heard of being diagnosed is 88. Many people are diagnosed in the 30 to 50 age span of life. The life span after diagnosis can be from 10 to 25 years, less when a child is diagnosed. During these years, the person looses so much in many ways as the brain is destroyed, ability to walk, talk, eat, and care for themselves, leading to dependence on others for their care.
Again, thank you for your support. I would like to thank each person personally, so if you give your email or snail mail address, that would help me.
Love, peace and prayers, Gerleine
PS. Thanks to another donation that is not shown as a credit to my total.. My total funds raised was $775.00.. thanks for all my children that keep me going...