Burt Family Fundraising

JETT FOUNDATION

Burt Family Fundraising


Burt Family Fundraising

What is the JettRide?

JettRide is an annual, exciting, life changing, adventure that 20 teens will be embarking upon this summer. While most teenagers will be at the mall or the beach, our JettRiders will proudly bike 1,500 miles across the country to help raise funds and awareness for Duchenne Muscular Dystrophy (DMD), a devastating, progressive neuromuscular disorder which robs those diagnosed of their independence and eventually their life.

From July 5th to August 5th, our team will bike through 8 states and numerous cities/towns. The ride will take off in Minneapolis, Minnesota, and will end in Point Pleasant, New Jersey.  JettRiders ride for those who can't.

What is Duchenne?

Duchenne is the most common lethal genetic disorder diagnosed during childhood today. It is a progressive neuromuscular disorder that causes loss of muscle function and independence. DMD affects approximately 1 in every 3,500 boys, or 20,000 babies born each year worldwide. Because the DMD gene is found on the X chromosome, the disorder manifests primarily in boys. DMD affects families of every race and culture. Regardless of family history, DMD can occur in any pregnancy. Random spontaneous genetic mutation is the cause of DMD in nearly 35% of families affected. No known effective treatment or cure currently exists for DMD.


What is the Jett Foundation?

The Jett Foundation for Duchenne muscular dystrophy was founded in 2001 by Stephen and Christine McSherry, when their son, Jett McSherry, then 5 years old, was diagnosed with Duchenne muscular dystrophy (DMD). The mission of the Jett Foundation is to improve the treatment, quality of life and long term outlook for all individuals affected by DMD through research advocacy, education and compassion. After nine years of steady progress in the fight against this dreadful disease, the Jett Foundation is known throughout the country as a leader, funding promising research and as a strong advocate in this battle.


Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. But if you'd rather send a check, please make it out to the Jett Foundation, with The Burt Family written clearly in the memo and mail to the Jett Foundation, 42 Elm Street, Suite 3, Kingston, MA 02364.

Thank you for visiting my fundraising page!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

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