How far would you go to help someone in need? I am willing to go 1,500 miles and I ask you to please sponsor me on this journey.
This is an exciting adventure that I will be embarking upon this summer. I will be joining a group of young people who will proudly bike 1,500 miles across the country to help raise funds and awareness for Duchenne muscular dystrophy (DMD). Duchenne is a devastating, progressive neuromuscular disorder, which robs those diagnosed of their mobility, independence, and eventually their life.
This event is called JettRide2012. From July 1st to August 3rd, our team will bike through 8 states and numerous cities/towns - including my hometown Hartland, MI and my favorite place, the Jersey Shore! The ride will take off in Minneapolis, Minnesota, and will end in Point Pleasant, New Jersey. All of the riders have had a neuromuscular disease impact their family or friends. We’ll be talking about DMD, raising money, and visiting boys with Duchenne all along the way.
This will be my second summer participating in the JettRide. I decided to be part of JettRide to support my brother, Kyle Van Houten. He has a slower progressing form of Duchenne called Becker muscular dystrophy, and I would like to help him in any way I can. Jett Foundation is paying for research that we hope will put an end to Duchenne. I want my brother to be able to run, play baseball and ride a bike with his friends, like he used to be able to do.
What is Duchenne? Duchenne is the most common lethal genetic disorder diagnosed during childhood today. It is a progressive neuromuscular disorder that causes loss of muscle function. DMD affects approximately 1 in every 3,500 boys, or 20,000 babies born each year worldwide. Because the DMD gene is found on the X chromosome, the disorder manifests primarily in boys. DMD affects families of every race and culture. Regardless of family history, DMD can occur in any pregnancy. Random spontaneous genetic mutation is the cause of DMD in nearly 35% of families affected. (like ours) There's no known cure or way to stop Duchenne - but a lot of scientists and doctors around the world are trying very hard to find one soon.
What is the Jett Foundation? The Jett Foundation for Duchenne Muscular Dystrophy was founded in 2001 by Stephen and Christine McSherry, when their son, Jett McSherry, then 5 years old, was diagnosed with DMD. The mission of the Jett Foundation is to improve the treatment, quality of life and long term outlook for all individuals affected by DMD through research, advocacy, education and compassion. After eleven years of steady progress in the fight against this dreadful disease, the Jett Foundation is known throughout the country as a leader, funding promising research and as a strong advocate in this battle. My parents know the McSherry's personally.
Jett Foundation is a 501C3 non-profit organization. You will receive a receipt for tax purposes.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. But if you'd rather send a check, please make it out to the Jett Foundation and mail to the Jett Foundation, 68 Evergreen Street - Suite 1, Kingston, MA 02364. Write "Jack Van Houten" in the memo, so your gift can be counted towards my fundraising goal.
Thank you for your support!
Jack Van Houten
Age 15, Hartland, Michigan