Hi everyone! Welcome to my fundraising page for JettRide 2011!
This is an exciting, life changing, adventure that I will be embarking upon this summer. I will be joining a group of young people who will proudly cycle to help raise funds and awareness for Duchenne Muscular Dystrophy (Duchenne). Duchenne is a devastating, progressive neuromuscular disorder which robs those diagnosed of their mobility, independence, and eventually their life.
This event is called JettRide 2011. From July 5th to August 5th, our team will bike through 8 states and numerous cities/towns! The ride will take off in Minneapolis, Minnesota, and will end in Point Pleasant, New Jersey.
I will be joining the ride to raise awareness and money for research for Duchenne muscular dystrophy, and to tell my brother Jacob's story. Hopefully soon, with the help of this research & money raised by the JettRiders a cure will be found.
I am riding for my brother Jacob who has Duchenne muscular dystrophy. He has had this disease for nineteen years. I will try to help as much as I can, so there may be more research for a new medicine that can benefit him, and all the other boys affected by Duchenne.
What is Duchenne? Duchenne is the most common lethal genetic disorder diagnosed during childhood today. It is a progressive neuromuscular disorder that causes loss of muscle function. Duchenne affects approximately 1 in every 3,500 boys, or 20,000 babies born each year worldwide. Because the Duchenne gene is found on the X chromosome, the disorder manifests primarily in boys. Duchenne affects families of every race and culture. Regardless of family history, Duchenne can occur in any pregnancy. Random spontaneous genetic mutation is the cause of Duchenne in nearly 35% of families affected. (like ours) There's no known cure or way to stop Duchenne - but a lot of scientists and doctors around the world are trying very hard to find one soon.
What is the Jett Foundation? The Jett Foundation for Duchenne Muscular Dystrophy was founded in 2001 by Stephen and Christine McSherry, when their son, Jett McSherry, then 5 years old, was diagnosed with Duchenne muscular dystrophy. The mission of the Jett Foundation is to improve the treatment, quality of life and long term outlook for all individuals affected by Duchenne through research advocacy, education and compassion. After nine years of steady progress in the fight against this dreadful disease, the Jett Foundation is known throughout the country as a leader, funding promising research and as a strong advocate in this battle.
Jett Foundation is a 501C3 non-profit organization. You will receive a receipt for tax purposes.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. But if you'd rather send a check, please make it out to the Jett Foundation and mail to the Jett Foundation, 42 Elm Street, Suite 3, Kingston, MA 02364. Write "Kelsey Gunvalson" in the memo, so your gift can be counted towards my fundraising goal.