This summer, I will be participating in a life changing adventure & I need your help! I will be participating in the JettRide 2012, This Is How We Roll!!
For 1 month, I will cycle 1,500 miles, from Minnesota, MN to Point Pleasant Beach, NJ!!! I will ride for boys who cannot, boys with Duchenne muscular dystrophy (Duchenne).
Over the course of 4 weeks, our team will bike through 8 states and over 100 cities/towns. The ride takes off from MN on July 1, 2012 and will arrive in NJ on August 3, 2012.
I will be riding for my friend Cory, who has Duchenne. Cory is eleven years old and is in the fifth grade at Paxson Elementary in Missoula, Montana.
Cory loves to read. He reads National Geographic from cover to cover with full comprehension. He dreams of going to distant places, Africa is at the top of his list because he wants to see exotic animals like elephants, giraffes, hippos and lions to name a few. He is curious about other cultures and languages and the ways people live beyond the United States. He plans to become a photographer for National Geographic when he grows up. Cory is always thinking about the adventures he will have when he grows up. He has done a fair amount of travelling already, to Connecticut, Arizona, Washington, Ohio, Oregon, California, Wisconsin, Wyoming, Minnesota and even Mexico; he loves to go places.
Cory is a world-class animal lover. He always hugs his dog Mojo and Snowflake the cat before he leaves for school in the morning. He can’t walk past an animal without asking the owner if he can pat their dog and then he asks the name, the breed, and many other questions before the pet and owner are able to continue on their way. Cory participates in hippotherapy, or therapeutic horseback riding, although he really wants to get out of the arena and ride fast through the fields without anyone holding him back. He always gives his horse a hug when he is finished riding and whispers his thanks.
Cory is an artist; he has notebooks filled with his pictures. Hand him a pen and a piece of paper and he is a happy guy. Cory is a speller; he placed fourth in the Paxson Elementary spelling bee this year. He has plans to become a world class speller. Cory loves to laugh and is a little comedian. He doesn’t like to get too serious and loves to joke around; his big smile is almost always ready to appear. Cory is a storyteller; he writes wonderful essays about his travels, his favorite pets, his favorite hikes, and the people he loves.
Cory likes to hike, ride his bike, play tennis, play catch, and swing in his tire swing. He sometimes struggles to do these things and he tires easily. Cory was diagnosed with Duchenne Muscular Dystrophy when he was eight years old. After his diagnosis, Cory was prescribed steroid treatment which reduced the falling tremendously, but it does not stop the progression of this muscle wasting disease. Cory now understands a little better why he is physically unable to do many things other boys his age are able to do, but he does not let Duchenne stop him from trying. Cory is an extremely tenacious, curious, and intelligent young man who just happens to have Duchenne.
Duchenne is the most common lethal genetic disorder diagnosed during childhood today, affecting approximately 1 out of every 3,500 boys. Duchenne causes loss of muscle function and independence, there is no known treatment or cure for Duchenne.
I am participating in this event, not only because unlike boys with Duchenne, I CAN, but also because the Duchenne community needs much continued support to move ahead with urgently needed research and clinical trials.
With your help, I will ride for those who cannot. Each mile will bring us closer to finding a cure for Duchenne muscular dystrophy!
If you would like to sponsor my efforts, you may do so here!! If you would rather send a check, please make it payable to the Jett Foundation, 68 Evergreen Street, Suite 1, Kingston, MA 02364, with my name & JettRide written in the Memo. The Jett Foundation will issue you a tax deductible receipt for your contribution.
Many thanks for your support!! Don't forget to forward this to anyone you think might want to support me as well!
*Donating through this website is simple, fast and secure.Thank you for visiting my fundraising page!