Kylie was diagnosed with Juvenile Dermatomyositis in August of 2010 at the age of 7. We took her in to get a blood test after about 6 weeks of increased fatigue and muscle weakness. What we thought was going to be just a vitamin deficiency turned out to be a whole lot more! After the initial blood tests came back we were told to make an appointment with Seattle Children's Hospital as soon as possible to see what was going on with Kylie. We were able to get her in the following week and after a short visit with the amazing rheumatologist (who was to become our primary doctor in treating Kylie) She was diagnosed with Juvenile Dermatomyosits, a rare autoimmune disease that affects about 3 in a million children. We were admitted immediately to children's hospital where Kylie ended up staying for three days to get a start on her treatment plan. While she still has quite awhile before we can hope for remission, we are happy to say that Kylie's treatment is going well and she is getting healthier every day thanks to the amazing care she has received from her doctor and Seattle Children's Hospital!
Although Kylie has had to deal with many life changing things because of this disease (physical changes from steroids, at home injections once a week, blood draws every few weeks, 5+ pills to swallow every day, etc.) she hasn't let it take that beautiful smile off of her face!
Thank you so much for sponsoring Kylie! Not only are you helping to fund the research in finding a cure for this disease, but you are showing your love and support for this amazing little girl who is one tough cookie :)