Thank you for visiting the NEON EXTREME fundraising page!
Team NEON EXTREME is running The Cape 13 Relay, a 188-mile race from Quincy, MA to Provincetown, Cape Cod (learn more here) May 6th and 7th to raise money for a brain disease called Frontotemporal Dementia or FTD. FTD strikes earlier in life than the better known Alzheimers disease, and unlike Alzheimers, which affects memory, FTD destroys speech and behavior, robbing the patient of their personality and then their life. FTD is the second most common form of dementia, however, there is no government funding, no preventative medicine and no cure. Because of the ignorance surrounding FTD, people are misdiagnosed every day.
Alexandra and Graham Sparks, both on the team, are personally affected by this disease. Their father was diagnosed in 2004. For a look into their family's fight with FTD, watch the CNN special featuring the Sparks family here (filmed in 2009).
Team NEON EXTREME: Alexandra Sparks, Graham Sparks, Mark Rautiola, Eric Rautiola, Abby Weiner, Lara Levine, Erin Lawson, Liz O'Connor, Stephanie Hargadon, Will Mullin, Todd Buffum, Ellis Reavey
Learn more about the team here.
Please help us fight this horrible disease by donating to our efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!