Our son Joey was born in 2004 with a rare genetic condition called Cornelia de Lange Syndrome. Our lives have changed in so many ways since the birth of Joey. Therapy sessions, doctor visits and special education services have become our lives - our normal. But we wouldn't have it any other way. Joey is a bright star in our lives - he is a gifted teacher, a hard worker and a loving human being.
The CdLS Foundation has been a great resource to us. We receive an immense amount of information and support. There is always someone available to lend a helping hand or offer guidance to families who face the daily struggles of raising a child with Cornelia de Lange Syndrome.
On October 11, many dedicated individuals will hit the pavement and run in the Chicago Marathon as a part of Team CdLS. Their goal of helping to support the wonderful work of the CdLS Foundation needs our help too. This year I am participating as a phantom runner in hopes of giving back in some way all the wonderful gifts we have received from the Foundation. Give as much or as little as you like, but please help Joey and the other children and adults like him to continue to receive the awesome support of the Cornelia de Lange Syndrome Foundation. Thank you.
Thank you for visiting my fundraising page!
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!