Hi Friends & Family!
Thank you for visiting my ALS ONE fundraising page for the 44th Running of the Falmouth Road Race! I'm proud to be running for the ALS ONE IRON KNIGHTS!
I am running for ONE reason: to help raise funds for ALS ONE so that the unprecedented partnership of the world's leaders in ALS can achieve their goal of finding a treatment or cure for ALS by January 2020. Their shared science plan is set to do just that. All they need now is funding. This plan will also improve care to those currently living with ALS.
Please take 6 short minutes to watch this inspiring video of how ALS ONE came together. https://player.vimeo.com/video/163872858
YOU MIGHT WIN!!!! When you donate in multiples of $50, you will be entered to WIN a raffle prizes EACH DAY for 4 consecutive weeks starting Road Race Day (August 21st and continuing each day until September 17th)? Donate $50, get 1 raffle ticket, $100 get 2, $150 get 3, etc. There is over $6,000 in prizes!!! We will announce winners daily on Facebook and contact you if you win! Check out the great raffle items that were donated to our team fundraising calendar by clicking: here:https://docs.google.com/presentation/d/1uwWCkAcVOQm5tG1zL01jP
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
Here's a little more about ALS ONE from their website (www.alsone.org):
About ALS ONE's Founder, Kevin Gosnell:
Every morning, Kevin Gosnell opens his eyes and realizes he has another day.
Another chance to move his goal forward.
Another opportunity to bring people together.
Another 24 hours to motivate, inspire, build and plan for a future that won’t include him.
In May of 2015, this 47-year-old husband, father of three and small business owner, was diagnosed with an aggressive form of ALS. After realizing there was no cure, and little that doctors could do to even treat his devastating condition, Kevin made a brave decision. To dig deeper. Ask questions. And use the resources, team building skills and relationships he had cultivated as a small business owner to create a new business. One committed to bringing the best doctors, researchers, and care practitioners together. To raising funds to fuel their efforts. And in the end, to finding a cure for ALS.
This is the story of one remarkable man.
With one inspired plan.
And one determined goal.
This is the story of ALS ONE:
Identify a treatment for ALS and enhance care resources for persons living with ALS.
Expert leaders in ALS research have convened to leverage the strengths of their venerable institutions to bring a treatment to patients within four years. The team:
• Dr. Robert Brown Jr., MD, DPhil UMass Medical Center
• Dr. Merit Cudkowicz, MD, MSc Massachusetts General Hospital (MGH)
• Dr. Steve Perrin, Ph.D. ALS Therapy Development Institute
• Dr. Nazem Atassi, MD Massachusetts General Hospital (MGH)
• Dr. James Berry, MD Massachusetts General Hospital (MGH)
• Ron Hoffman, Founder and Director Compassionate Care ALS (CCALS)
Together, this team has identified the strongest therapeutic opportunities in ALS, and has developed a plan with the goal of bringing treatment to patients within four years.
The ALS ONE scientific plan is milestone driven, and will require significant funding to advance. Our approach is to leverage the expertise from the research institutions involved in a true partnership, including the share of ideas and responsibilities to advance each of the strongest therapeutic opportunities identified forward. A percentage of funds raised will be directed to Compassionate Cares ALS (CCALS) and the ALS Clinics at Massachusetts General Hospital and UMass Medical Center to assist persons living with ALS with the many needs they will face until a treatment is available.
To raise money to fund care and a cure for ALS.
THANK YOU for your HELP!