Thank you for visiting my fundraising page!
Leah Manth is a beautiful, intelligent 14 year old girl who has Neurofibromatosis Type 2 (NF2). NF2 is a genetic disorder in which Leah is lacking a protein. The absence of this protein means that Leah and others affected by NF2 develop tumors along nerves in both the peripheral and central nervous systems. Leah currently has several tumors in her brain and spine. She has endured 8 surgeries in the 4 years. Leah has partial hearing loss in her right ear requiring her to use a hearing aid. She also has facial paralysis on one side of her face due to a tumor that destroyed her facial nerve. The money raised will be used to privately fund research targeted at shrinking tumor growth in NF2 patients, advocacy efforts for continued funding of NF research on a federal level, as well as to support NF2 awareness efforts and outreach materials. Our Run4Leah/CureNF organization is fueled 100% by volunteers!
Despite Leah's medical problems she is a happy, normal 9th grader who desperately just wants to be a little girl. Leah runs cross country, track, and has a 95 averagel. Anyone who comes in contact with her is amazed at her courage and positive view on life. Leah is truly an inspiration to everyone who meets her. To learn more about Leah, NF2, or our Run4Leah/CureNF team visit our blog at leahmanth.com.
HOW TO HELP:
Our annual fundriasing campaign centers around the Buffalo Marathon. This will be the Run4Leah/CureNF team's 8th year participating and our goal is to raise $26,000 with 100 runners/walkers.
TO DONATE OR SPONSOR A RUNNER: Use this website - it is fast, simple and secure - simply click on the green "DONATE" icon. If making a donation to sponsor a runner/walker, please list the participant's name in your donation message. The donor may still remain anonymous, if desired. Checks are also accepted and should made out to NFInc.NE and mail them to Dave Manth 2922 Walck Drive North Tonawanda, NY 14120.
MARK YOUR CALENDARS!! TO RUN/WALK IN THE BUFFALO MARATHON ON SUNDAY, MAY 24, 2015: You can run/walk the full marathon- 26.2 miles, a half marathon -13.1 miles or as part of a 4 person relay. Please contact Anne Patterson at firstname.lastname@example.org
The 2015 Run4Leah Team:
Full Marathon: Bev Walters, Ashley Goodrich, Andrea Hutton, Kelli DeMarco, Sarah Davis, David Graf, Melissa Malerba, Cathy Haight, Alexis Rhode
Half Marathon: Patrick Dalton, Derek Weaver, TJ Jones, Heather Noonan, Larissa Weir, Ashley Weir, Heidi Cornell, Mike Manth, Alan Jaenecke, Kayla Cairnduff, Ken Eckhert, Claire Movalli, Jenna Sztorc, Luke Vogel, Jessica DeMarco, Tom Mooney, Caroline Fike, Anya Fike, Mark Lee, Megan Lee Katie Lee, Kelsi Linton, Chelsie Ciminelli, Natalie Passmore, Melissa Gillen, Andy Klettke, Brigid Maloney, Courtney Daily, Kirstin Hawayek, Janet Curry, Donna Hutton, Cathy Burns, Brittany Serafini, Anne Patterson, Dan Patterson, Marybeth Putney, Adam Griffin, Sean Keenan, Brianna Kelly
Relay Runners: Christie Koester, David Downs, Mill Lockwood, Liz Cassidy, Shelly Ferullo, Sarah Tasker, Mary O'Leary, Betsey Boss, Gabriel Tasker, Brady Tehan, Jake Tasker, Deacon Tasker, Jay DePerno, Sean O'Leary, Cassandra Tasker, Paul O'Leary, Tommy O'Leary, Anna Patterson, Caelan Kavcic, Lisa Hoffman, Meaghan Tent, Bryant Tent, Devin Leary, Parker Tent, Jennifer Catanzaro, Katie Meyer, Jill Randall, Danielle Patterson, Nicole Smith, Brad Smith, David Ryan, Andrea Ryan
5K on May 23: Alan Jaenecke, Jim Scutt, Michelle Bullock, Jill Diemert, Becca Diemert, Dan Diemert, Courtney Diemert, Lauren Diemert, Kaylea Diemert, Lacey Bromely, Scott Swanson