Run4Leah/CureNF

NEUROFIBROMATOSIS INC NORTHEAST

Run4Leah/CureNF


Run4Leah/CureNF

Thank you for visiting our Run4Leah/CureNF fundraising page for the 2017 Buffalo Marathon Team sponsorhip!

Our daughter, Leah Manth is a beautiful, intelligent 16 year old girl who has Neurofibromatosis Type 2 (NF2). NF2 is a genetic disorder in which Leah is lacking a protein. The absence of this protein means that Leah and others affected by NF2 develop tumors along nerves in both the peripheral and central nervous systems. Leah currently has several tumors in her brain and spine. She has endured 12 major surgeries in the past 9 years as a result of enlarging NF2 type tumors.  With NF2, patients and their families must often choose life saving procedures that have unfortunate and negative consequences.   For Leah, her surgical procedures have been life saving but lead to deafness in her right ear, facial paralysis on her right side, the inabilitity to completely close her right eye, balance issues and the loss of feeling in parts of her lower leg, shoulder and neck areas. 

When diagnosed 10 years ago, there were no effective treatments for NF2 other than surgery.  Because of growing awareness and research funding, Leah now receives Avastin, a chemotherapy that through research and the lengthy process of drug screening and clinical trials is now an available treatment option for certain types of NF2 type tumors.  Our annual fundraising campaign Run4Leah/Cure NF solicits donations to support Leah and others facing the daily challenges of Neurofibromatosis.  The money raised by sponsoring a runner, volunteer or Leah herself as part of our Run4Leah/Cure NF Team will be used to privately fund research targeted at shrinking tumor growth in NF2 patients, advocacy efforts for continued funding of NF2 research on a federal level, as well as to support NF2 awareness efforts and outreach materials.  Our Run4Leah/CureNF organization is celebrating 10 years and continues to be fueled 100% by volunteers! 


Despite Leah's medical challenges she is a happy, normal 11th grader who desperately just wants to enjoy being a teenage girl. When she isn't fundraising, educating or recovering from an NF2 related surgery, Leah is busy running cross country, track, and maintaining a 96 average! She is an avid outdoors-woman and enjoys hunting, fishing, kayaking, and hiking. Anyone who comes in contact with her is amazed at her courage and positive view on life. Leah is truly an inspiration to everyone who meets her.

To learn more about Leah, NF2, or our Run4Leah/CureNF team visit our blog at leahmanth.com.


HOW TO HELP:

Our annual fundriasing campaign centers around the Buffalo Marathon.  This will be the Run4Leah/CureNF team's 10th year participating and our goal is to raise $50,000 with 100 runners/walkers.  Please make your donation today!
 

TO DONATE OR SPONSOR A RUNNER: Use this website - it is fast, simple and secure - simply click on the green "DONATE" icon.  If making a donation to sponsor a runner/walker, please list the participant's name in your donation message.  The donor may still remain anonymous, if desired.  

Checks are also accepted and should made out to Neurofibromatosis Northeast and mail them to:

Dave Manth, 2922 Walck Drive, North Tonawanda, NY 14120

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

To learn more about Neurofibromatosis visit: www.fnincne.org


MARK YOUR CALENDARS!! TO RUN/WALK IN THE BUFFALO MARATHON ON SUNDAY, MAY 28, 2017: You can run/walk the full marathon- 26.2 miles, or the half marathon -13.1miles or the 5K Race which takes place on May 27th. 

Please contact Anne Patterson our Team Coordinator at run4leah@gmail.com for more information.

 

The 2017 Run4Leah/CureNF Team:

Full Marathon - May 28: Bev Walters , Ashely Goodrich, Alan Jaenecke, Melissa Malerba, Ellen Duane

 

Half Marathon - May 28: Kirstin Hawayek, Mill Lockwood, Patrick Dalton, TJ Jones, Dan Patterson, Anne Patterson, Mark Walck, Rachel Liedkie, Paul Liedkie, Michael Manth, Anna Patterson, Chloe Zuch,  Kelsey Zuch, Catherine Haight, Tim Robertson, Dennis Burns, Heidi Cornell, Desiree Doucette, Jen Sawyer, Nate Sawyer, Brittany Serafini,  Mindy Walck, Leah Gath, Hannah Carney, Tom Mooney, Briana Kelly

 

5K - May 27: Patrick Dalton, Cathy Burns, Marybeth Shaw, Duncan Shaw, TJ Jones



 

Donate
$50,000
goal
$30,775
raised
62%
Run4Leah/CureNF
Leah in Wyomng