Our beautiful 9 year old daughter Leah, was diagnosed in July, 2007 with Neurofibromatosis 2 (NF2). NF2 is a rare disorder where the child is lacking a protein that suppresses tumor growth. Without this protein, children like Leah develop benign tumors that grow in the brain, spinal cord and throughout the body. These tumors can grow large enough to cause neurological problems like deafness, blindness and seizure activity depending on their size and location. Sometimes the tumors can be surgically removed, but at great risk to the child.
Leah currently has 6 tumors in her brain and had one in her neck compressing her spinal cord at C2. On December 9, 2008 Leah endured a nine hour surgery to remove her spinal tumor followed by almost two weeks in the hospital. The surgery was successfull but very taxing for an eight year old. We do not want her to have to go through this ever again, and that is why we ran in the Buffalo Marathon again this year. We will continue to fundraise through the summer before tallying up this year's totals and soliciting research proposals to fund for NF2.
Thank you for all of your support.
John and Linda Manth
Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
WE DID IT!!!! May 24, 2009 was a beautiful day for a marathon and for NF supporters. 134 runners and over 100 volunteers helped make the weekend a complete success. To date we have raised over $33,000 this year and almost $90,000 since we began fundraising in January of 2008. We could not have done this without your generous donations! The money you helped raise will go directly toward NF2 research through NFInc Northeast.
We have been so overwhelmed by the generosity of our family, friends and complete strangers. Some of you gave to support specific runners, some of you gave to support our cause, but you gave with your hearts, and words cannot begin to tell you our gratitude.
Our family is not stopping here, we plan to continue fundraising until a cure or manageable treatment is found. On August 29th, we will be having the first annual Leah Manth Golf Tournament at Deer Wood Golf Course in North Tonawanda. For more information or to register please call Peter Witt at 308-1379. We are continuing to update our e-mail database for communicating with all of you. If you are interested in being part of this web list please e-mails us at JManth7028@aol.com
and we will add you. This will be used for future fundraisers, announcements and updates, you can also keep checking leahmanth.com for updates.
John, Linda, Erin, Christopher and Leah Manth