I am participating in Cure JM Foundation’s national fundraising and awareness event taking place in Baltimore, Maryland on October 12th and 13th.
This is for my daughter, Jessica Stewart, who lost her battle with Juvenile Dermatomyositis on November 5, 2011. She was just 16 years old. And what a battle she fought! Jessica was diagnosed in February of '08, after about 5 months of trying to figure out what was causing her pain and discomfort. I finally found a great pediatric rheumatologist, Dr. Bita Arabshahi, who recognized the symptoms right away and quickly got the diagnosis through blood tests and a skin biopsy. Through aggressive treatments and meds, her dermatomyositis seemed under control for a year or so. Unfortunately, in the last year or so of her life, this disease progressed rapidly, she was getting infection after infection,many complications and many lengthy hospital stays. Through it all, Jessica stayed strong and positive! She always managed a smile. She touched a lot of lives with her strength and courage! She was worried about me more than her self sometimes. She was just a wonderful daughter and I miss her soo much!
So, that being said, I am participating in the CureJM national fundraising and awareness event this year. We need to raise money to fund the research needed to find a cure for this dreadful disease! We need to raise awareness too, so that families and doctors are able to recognize the symptons and get an early diagnosis.
Cure JM Foundation is an all-volunteer non-profit organization which was created and is managed by families of children with Juvenile Myositis (JM). Cure JM Foundation’s mission is to provide support to families coping with JM, raise awareness of JM and fund research that will ultimately lead to a cure.
JM is a rare autoimmune disease in which the body's immune system attacks its own cells and tissues. For many children with JM, it's a challenge to simply stand up or sit down and can be life-threatening. This rare disease affects approximately 2-4 children out of a million.
The Foundation’s aspirational goal is to never, ever let another child suffer with Juvenile Myositis. With your help, this goal may be well within reach some day.
Please consider DONATING today! No amount is too small, every dollar we raise gets us one step closer to our goal!
You can also mail your donation to:
Cure JM Foundation
836 Lynwood Drive
Encinitas, CA 92024
Corporate matching forms can be faxed to: