- Hap and Claudia
- Kory Thank you for all you do for us JM kids!
- Suzy Clement We'll never never never quit!
- Suzanne Edison
Suzanne Edison's Page
ONLY 12 DAYS UNTIL 2012 CONFERENCE!! PLEASE HELP IN WHATEVER WAY YOU CAN.
I started going to the Cure JM conference the year Flora was diagnosed with Juvenile Dermatomyositis. That was 2007. These conferences are tremendously supportive of all JM families. Because I met some of the top doctors and researchers in the field, and was able to get Flora seen by one of them, she is doing very well today. After nearly 5 years she reached remission and has been off medicine for a year ! While we celebrate her victory, we know many others still suffer, and a few die because there is not YET a cure for JM. She could experience a relapse at any time.
I am participating in Cure JM Foundation’s national fundraising and awareness event taking place in Baltimore, Maryland on October 12th and 13th. Though I am not running, I always stand at the finish line handing out water, congratulating the amazing people who have the courage and stamina to run. I am grateful to all of our runners and volunteers.
Cure JM Foundation is an all-volunteer non-profit organization which was created, and is managed by, families of children with Juvenile Myositis (JM).
I am also currently the Family Support Director and I know many of the families personally or am in contact via our online support systems.
Cure JM Foundation’s mission is to provide support to families coping with JM, raise awareness of JM and fund research that will ultimately lead to a cure.
JM is a rare autoimmune disease in which the body's immune system attacks its own cells and tissues. For many children with JM, it's a challenge to simply stand up or sit down and can be life-threatening. This rare disease affects approximately 2-4 children out of a million.
The Foundation’s aspirational goal is to never, ever let another child suffer with Juvenile Myositis. With your help, this goal may be well within reach some day.
Please consider DONATING today! No amount is too small, every dollar we raise gets us one step closer to our goal!
You can also mail your donation to:
Cure JM Foundation
836 Lynwood Drive
Encinitas, CA 92024
Corporate matching forms can be faxed to: