Join our team in the fight against HD!
Run/walk in the 2014 Tri-City Medical Center Carlsbad Marathon &Half!
Raise funds and awareness for HD & HDSA!
To receive your entry code to register contact: Stephanie at firstname.lastname@example.org or 619-225-2255
*registration fee will be reimbursed when fundraising goal of $1,000 is reached
About the Huntington’s Disease Society of America
The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States. To learn more about Huntington’s disease and to get involved in HDSA, please visit www.hdsa.org/sd.
What is Huntington’s Disease?
Huntington's disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure and only one FDA-approved treatment for a symptom of HD. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Cases of juvenile HD have been diagnosed in children as young as two years of age. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD. Each of their siblings and children has a 50 percent risk of developing the disease, therefore 250,000 are at risk. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.
How do proceeds benefit HDSA?
All proceeds support HDSA’s fight to improve the lives of people affected by HD and their families.