2017 eWalk

Thursday, April 27, 2017

Benefiting PRADER-WILLI SYNDROME ASSOCIATION

What is eWalk:

eWalk is Prader-Willi Syndrome Association (USA)’s online virtual walk that allows anyone, from anywhere, to participate.  It’s a simple way to raise funds and spread awareness for PWS.  

By creating a personal fundraising page, you will be able to share your web link through social media and email. People will click your link to see your page, read about your unique connection to PWS, and donate to help our cause.

The Purpose of eWalk:

Your participation in eWalk will provide critical funding to help us continue our mission: “To raise awareness, offer support, provide education and advocacy, and promote research to enhance the quality of life of each person affected by Prader-Willi syndrome.” 

On a daily basis, we work with families who are dealing with one or more of the multifaceted challenges affecting our loved ones with PWS.  Last year, we provided support to families in all 50 states and 33 countries.  This was a record number of families for any one year.  We also provided support to the families of over 217 newly diagnosed children with PWS. 

Our targeted programs dealing with behavior modification, crisis intervention, education advocacy, guardianship, medical intervention, and legal and legislative advocacy are an important lifeline to our families. 

These services would not be possible without your help.

How to get started:

Click on the fundraise button to the right. You will be walked through a step-by-step process to create your personal fundraising page. Once you have created your page, keep an eye out for our best practice success kit via email.

If you have any questions or need assistance at any point, please contact Leanne Gilliland @ 941-487-6743 or LGilliland@pwsausa.org for help.

 

We are so grateful to have you as part of our 2017 eWalk Team!

 

“Each one of us can make a difference. Together we can make change.”     

 –Barbara Mikulski