Stomping Out the Flames 2018

Sunday, April 22, 2018

Benefiting REFLEX SYMPATHETIC DYSTROPHY SYNDROME ASSOCIATION (RSDSA)

Join us in Manassas, VA at the Manassas Mall by the "At Home" enterance for the 2nd Annual Stomping Out The Flames of CRPS event.  On April 22, 2018, between 1 p.m. and 3 p.m., we will be walking to spread awareness and to raise money to help find a cure.  Please come dressed in your finest orange, the more the better!  We will also have face painting for the little ones, music and a raffle at the end.  There are several different prizes to win! So stick around for all the fun!

Register here and create team pages. Which team will be the largest? Which team will fundraise the most? Start up a friendly competition to help charity! Registration includes a t-shirt for those that register in advance. While walk ups are accepted, a shirt cannot be guaranteed for those registrants.

Please contact Christina with questions. During the week, Christina will be able to respond to questions after 4 p.m.

Details:

When: April 22, 2018 at 1 p.m.

Where: Manassas Mall in Manassas, VA

Cost: $15 for adults (ages 13 and older), $5 for children (ages 5-12), Free for children under the age of 5. Virtual walkers and volunteers are $10. Note: Please register as a warrior (person with CRPS), caregiver, or volunteer if you are attending the day of! If you are a general support, please use the generic registration selections.

Contact: Christina at 571-216-4426 or by clicking here to email her.

Sponsors

  • DJ AC of 2Hype Muzic Crew, LLC
  • Pitnny Creative, LLC

About the creator of Stomping Out The Flames of CRPS:

My name is Christina, and I have Complex Regional Pain Syndrome (CRPS).  I was diagnosed with CRPS in October 2016 in my left ankle and foot.  Following surgery to repair a torn tendon, I began to have unbelievable pain in my foot that was unlike any pain I had felt in my life. It took two and a half years for my surgeon to finally diagnose me with CRPS.  I had lived with the pain of CRPS for those two and a half years not knowing what was wrong with me, praying for a diagnosis.  My chances of remission, I have been told, are gone. 

Today, my hope lies in awareness. l work hard every day to try and live life to its fullest.  I talk about CRPS every chance I can to everybody I meet every day I am alive. We may not have the lives we had before CRPS, but we have the lives we have after CRPS,  and they are as good as we choose to make them one day at a time.

What Is CRPS?

Complex Regional Pain Syndrome is a chronic neuro-inflammatory condition that is generally caused by trauma, but can happen randomly. It has no cure, but is the most painful condition known to medicine today. It is debilitating and can cause extreme swelling, allodynia, hair/nail growth, and temperature change.